Showing posts with label chemotherapy. Show all posts
Showing posts with label chemotherapy. Show all posts

On to other things. Or not. Just things.

Posted by admin on 2/25/10

I was going to write about my latest obsession with wedding blogs and all things DIY. (Who knew I was crafty?) But then I remembered that this blog is about cancer and dance and not my lack of focus. Stay on track, Chemo Girl.

A report on this cycle, my 3rd. The first dose left me wondering whether my nagging symptoms would drag through the next treatment. Thanks to an easier experience on my second dose, I credit a few things:

-The chemo drugs were pushed through my IV at a slower rate this time. (Thanks drug-pushing nurses!) Two drugs are administered via syringe, so it's totally up to my nurse and her thumb. The other two take a slightly longer journey from very severe looking plastic bags and swirl through a long tiny tube into whichever lucky vein we've picked this week. The miracle of chemo.

-I've had the extreme fortune to participate in a very conveniently timed research study involving fascial release work. My fearless massage therapist, Jenice, takes on the weekly quirks facing my body. Initially I really noticed a reduced amount of jaw pain, and flu-like aches are significantly less. Insert positive testimonial HERE!  (Unfortunately I don't know how to add links to posts. Who wants to teach me?)

On to chemo treatment number 6! Almost halfway...
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The Adventures of Chemo Girl!

Posted by admin on 2/10/10

Her special power? In moments of sheer exhaustion, Chemo Girl surprises her fiercest foes with sudden bursts of energy: jumping in heels during a rare night out, dancing through the nausea in company class.

Every one of these startling instances is her opportunity to deliver a time bomb to these vicious invaders. Her energetic optimism is just a reminder: your days are numbered, cancer cells.

And she wears a cape.

Stay tuned! Tomorrow Chemo Girl meets her fate at the PET scan...
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Sad...

Posted by admin on 10/2/09

Yesterday one of my Hodge Friends lost her 13 year battle.
Adrienne, you will be missed.

The photo below was taken in Boston a year or so ago.
Adrienne is on the far left.


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Oh My, Today Has Been CRAZY

Posted by admin on 8/18/09

Yes- what is going on with that guy above is something similar to what was going on with me for many hours now. It started last night and continued on throughout today. I did not sleep yet! I experienced mood swing after mood swing, mostly sadness, frustration, manic, agitation, okay, repeat. My body/mind is tired! Thank you (not really) decadron (pre-chemo drug) + prednisone! Not the best combination for one of such a sensitive chemistry as I. On the bright side, if Music Therapy does not work out, I can be the poster child for BiPolar! I took four videos throughout this experience- each one shows quite a different character. In fact, my mom said I might even fit into the "multiple personality" poster child category. I am praying for a good night's sleep tonight. I am definitely going to take an Ambien. Feel free to disregard the kookiness of these past few blogs, or feel free to appreciate the many-facets of my nature that are revealed when I am on steriods. ;p
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Things Are Looking Up/!END OF CHEMO!/Can Anyone Say "Manic"? ;)

Posted by admin on 8/17/09


As of today, August 17, 2009, I am officially DONE with ABVD (and AVD) chemotherapy!!!!!!!! All twelve treatments/six cycles have BEEN COMPLETED!

I am THRILLED and feeling GOOD!!!! Thank you God and Angels for looking on me with such MERCY.

I AM READY to move along in my HEALING PROCESS!!! I will have the radiation, but in the way determined to be the most effective and safest by Dr. Hoppe and Dr. Nancy Mendenhall at the Proton Institute. Papers will be signed and a number of tests will be administered, including a PET Scan, to determine what form of radiation treatment will be most effective for my unique case.

During radiation treatment I will likey have to hold back on getting on the detoxification journey. But as soon as treatment is complete, I want to really give this body the best I can to help it repair itself and stay happy and well! I want to show it lots and lots of LOVE!!!

I want to move foward in my life, letting go of the past that only exists in my mind anyway. I want to grow more into my "adult" self, becoming increasingly self-possessed, responsible, and aware. I want to go further into this adventure with a greater sense of my connection with the Divine and a greater awareness of the Divine being all around me and within me at all times.

I want to go further with my education. The ideal for me I see is a combination of Music Therapy and religious/philosophical studies. I see how both of these can interweave and inform my ability to help others on their healing journey.

If it is God's will, I want to help the human get into better touch with the earth heart, the big heart, and heal. I don't even know if that makes any sense, but my dreams keep emphasizing to me the "Earth." We are divine, but we are also people "of the Earth." In order to heal, it seems, we need to re-connect with the Earth. Music is an ancient way of doing that. In fact, the earth and cosmos even issues out its own music in the form of frequencies and the sounds of nature.

I am perhaps getting off the topic. The point is.....it is TIME. To BE HERE NOW. Living, growing, embracing The Present and the EXPANSIVE possibilities.

Thank you to everyone for your support and love. Thank you also to everyone who has "hurt me." Thank you because YOU are part of ME trying to show ME myself. And it doesn't matter whether you know that or not! Thank you DIVINE for guiding me, teaching me, and helping me along this healing journey. You make me feel so strong and ancient.

And Thank You, Jillian for the picture, taken several months ago, at the top of this post. I love you SO much, my beautiful, fabulous friend!!!!!
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Please help me promote my funny cancer shirts!

Posted by admin on 7/31/09

I am looking for Bloggers to place my FunnyCancerShirts.com banner into the sidebar of their Cancer blogs. The site is getting a lot of exposure, sales have been great. You can feel all warm and bubbly knowing that a portion of each sale will be donated to a different cancer charity. The more shirts I sell, the more money I donate. Anything you could do to help with this would be GREAT!

Thanks in advance,
Ryan




Cut and paste the info from the text box below to add this animated banner to your page. Perfect size for the sidebar of your blog!

Funny Cancer shirts and Gifts





Cut and paste the info from the text box below to add this animated banner to your webpage.

Funny cancer Shirts and Gifts





If you just want to go crazy, and do some SUPER PROMOTING, cut and paste the info from the text box below to add this HUGE Funny Cancer Shirt ad to your page. Because of its size, you would need to place this code into a "New Post" on your Blog.

Funny Cancer Shirts and Gifts






If anyone needs help with adding the codes to your website or blog, please contact me.
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Really? She has CANCER?!

Posted by admin on 3/31/09

As many of you know, I am a photographer. About a year ago I started shooting classic pinup type shots.

Renee has got to be the most AMAZING gal I have shot pinups with to date.
14 years ago she was diagnosed with Cervical Cancer. She has relapsed a few times since and is currently undergoing treatment at the Cleveland Clinic for her illness.
Oh yeah, forgot to mention that Renee is the mother of 5 little girls, INCLUDING TRIPLETS!
Yeah, mother of 5 that is currently fighting cancer. You would NEVER know it by looking at her pic.







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Welcome to the club!

Posted by admin on 3/28/09

Today I had to welcome a very good friend to the "Cancer Club".
A long time buddy of mine was recently diagnosed with a very rare form of appendix cancer. When I say VERY RARE, I mean under 1000 people diagnosed per year. In my immediate group of friends, this make 3 of us that have had some wacky, rare form of cancer!
I am sure he will make it his Bitch!


Fucking cancer...
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Inflammatory Breast Cancer - What Is It?

Posted by admin on 2/11/09

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Inflammatory Breast Cancer develops rapidly. It accounts for up to 6 percent of all breast cancer cases in the USA. Survival rates are lower than those of other locally advanced breast cancers. The exact cause of IBC is unknown.

Different from other breast cancers that have a lump, Inflammatory Breast Cancer has the breast appearing normal in the beginning until tumor cells get into and block lymphatic vessels in the skin. This lymph fluid gets backed up causing the breast to swell up and become red, swollen and sore.

Here are some symptoms of IBC:

  • Sudden, fast change in the appearance of one breast, over the course of days or weeks

  • Thickness, heaviness or visible enlargement of one breast

  • Discoloration, giving the breast a red, purple, pink or bruised appearance

  • Unusual warmth of the affected breast

  • Dimpling or ridges on the skin of the affected breast, similar to an orange peel

  • Itchiness

  • Tenderness, pain or aching

  • Enlarged lymph nodes under the arm, above the collarbone or below the collarbone

  • Flattening or turning inward of the nipple

  • Swollen or crusted skin on the nipple

  • Change in color of the skin around the nipple

If the breast becomes red, swollen or sore, see a doctor immediately (I mean the same week!) to rule out Inflammatory Breast Cancer. If the breast fails to improve despite a week of antibiotics, ask your doctor to do more like ordering an ultrasound, mammogram or MRI and a biopsy of the skin. You might ask for a referral to a breast specialist.





Inflammatory Breast Cancer can easily be confused with a breast infection but it won't go away with antibiotics. A breast infection also causes redness, swelling and pain, but breast infections usually develop only during breast-feeding. You will probably have a fever with an infection.

Another cause of breast changes are breast surgery and radiation therapy. These might block the lymphatic vessels in breast skin, temporarily making the breast swell and become discolored. These changes will gradually go away.

The average women with IBC is 59 years. Black women are slightly more likely than are white women to get it. Men can develop IBC, too.

If the biopsy confirms IBC, the next step is to see how advanced the cancer is. The doctor might order a CT scan of your chest and abdomen, chest X-ray, and bone scan. The biopsy will be tested for the presence or absence of hormone receptors and to see if the cancer produces too much of a protein called HER2. Inflammatory breast cancers are often hormone receptor negative and HER2-positive.

Inflammatory breast cancer is classified as stage III-B or stage IV breast cancer. Stage III-B is locally advanced cancer — meaning it has spread to nearby lymph nodes and to the fibrous connective tissue inside the breast. Stage IV cancer has spread to other parts of your body, beyond the breast. About two-thirds of newly diagnosed inflammatory breast cancers are stage III-B.
Treatment for IBC involves chemotherapy, surgery and radiation therapy. About half the women diagnosed with the condition survive five or more years, and nearly one-third are alive 20 years after diagnosis.

Chemotherapy is done first to shrink the cancer and resolve skin problems before surgery. This allows proper healing of the skin. Most ladies receive more chemotherapy after healing. Radiation (it's like getting an x-ray, very easy!) is given to kill any remaining cancer cells in the breast and under your arm. Typical RT is 30 to 35 treatments, once a day, on week days.

The doctor might recommend further treatment to prevent cancer from returning. If the cancer tested positive for estrogen receptors, then you'll take hormone pills that are engineered to kill the cancer cells (they like to "eat" hormones). If the cancer is HER2-positive, the doctor will prescribe a pill for that, too.

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Christina Applegate and Breast Cancer

Posted by admin on 1/23/09

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In 2008, the 36-year old actress and already established breast cancer advocate, Christina Applegate found herself being diagnosed with breast cancer with a very important decision to make. Her cancer was found during a routine breast MRI that's able to find cancer cells earlier than mammograms can.

Her mother, singer Nancy Priddy, fought breast cancer twice and carries the BRCA1 breast cancer gene. Christina chose a double mastectomy even though her cancer was found in only one breast because the statistics were against her. Luckily, chemotherapy and radiation were not necessary.

Returning to work and future reconstructive surgery are in her future. She says she looks forward to have "great boobs" when she's in the "old folks home." By then, I don't think she'll be alone in that physical attribute!

Now Christina is focused not only on breast cancer awareness, but also to encourage early detection and help women get the tests they need and finances to pay for them.

Not all health insurers cover breast MRI's which can be quite expensive, so Applegate created the "Right Action for Women" organization aka the Christina Applegate Foundation. Its goal is to help women who have a higher risk for breast cancer receive and pay for breast MRI's. One of her fundraising efforts is to auction off ribbon roses, made from the ribbons of Christina's get-well-soon bouquets while she was in the hospital.

Applegate appeared on The Tonight Show, stating "If I can just save one person. That’s why I am doing this.”

"I'm going to face challenges, but you can't get any darker than where I've been," she said on Good Morning America. "So, just knowing that in my soul gave me the strength to just say, 'I've got to...I have to get out there and...and make this positive."

On the Oprah Winfrey Show, Applegate shared, "This is my opportunity now to go out and fight as hard as I can for early detection...there is this need and this desire to make every single day count...I used to say … 'Don't sweat the small stuff, not even the big stuff.' At the end of the day, none of it matters but your own joy, your own spiritual journey that you go on. God, your loved ones, your friends, your animals - these are the things you've got to cherish and love and embrace."
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31 Ways to Prevent Cancer!

Posted by admin on 1/7/09

31 Simple Ways To Prevent Cancer
from Reader’s Digest


Consider this number: 10 million. That's how many cases of cancer are diagnosed worldwide each year. Now consider this number: 15 million. That's how many cases of cancer the World Health Organization estimates will be diagnosed in the year 2020 -- a 50 percent increase -- if we don't get our act together. 

Most cancers don't develop overnight or out of nowhere. Cancer is largely predictable, the end result of a decades-long process, but just a few simple changes in your daily life can significantly reduce your risk.

Here are 31 great tips. 



1. Serve sauerkraut at your next picnic. A Finnish study found that the fermentation process involved in making sauerkraut produces several other cancer-fighting compounds, including ITCs, indoles, and sulforaphane. To reduce the sodium content, rinse canned or jarred sauerkraut before eating.
2. Eat your fill of broccoli, but steam it rather than microwaving it. Broccoli is a cancer-preventing superfood, one you should eat frequently. But take note: A Spanish study found that microwaving broccoli destroys 97 percent of the vegetable's cancer-protective flavonoids. So steam it, eat it raw as a snack, or add it to soups and salads.
3. Toast some Brazil nuts and sprinkle over your salad. They're a rich form of selenium, a trace mineral that convinces cancer cells to commit suicide and helps cells repair their DNA. A Harvard study of more than 1,000 men with prostate cancer found those with the highest blood levels of selenium were 48 percent less likely to develop advanced disease over 13 years than men with the lowest levels. And a dramatic five-year study conducted at Cornell University and the University of Arizona showed that 200 micrograms of selenium daily -- the amount in two unshelled Brazil nuts -- resulted in 63 percent fewer prostate tumors, 58 percent fewer colorectal cancers, 46 percent fewer lung malignancies, and a 39 percent overall decrease in cancer deaths. 


4. Pop a calcium supplement with vitamin D. A study out of Dartmouth Medical School suggests that the supplements reduce colon polyps (a risk factor for colon cancer) in people susceptible to the growths. 


5. Add garlic to everything you eat. Garlic contains sulfur compounds that may stimulate the immune system's natural defenses against cancer, and may have the potential to reduce tumor growth. Studies suggest that garlic can reduce the incidence of stomach cancer by as much as a factor of 12! 


6. Sauté two cloves of crushed garlic in 2 tablespoons of olive oil, then mix in a can of low-sodium, diced tomatoes. Stir gently until heated and serve over whole wheat pasta. We already mentioned the benefits of garlic. The lycopene in the tomatoes protects against colon, prostate, and bladder cancers; the olive oil helps your body absorb the lycopene; and the fiber-filled pasta reduces your risk of colon cancer. As for the benefits of all of these ingredients together: They taste great!


7. Every week, buy a cantaloupe at the grocery store and cut it up after you put away your groceries. Store it in a container and eat several pieces every morning. Cantaloupe is a great source of carotenoids, plant chemicals shown to significantly reduce the risk of lung cancer.
The Power of Antioxidants
8. Mix half a cup of blueberries into your morning cereal. Blueberries rank number one in terms of their antioxidant power. Antioxidants neutralize free radicals, which are unstable compounds that can damage cells and lead to diseases including cancer. 


9. Learn to eat artichokes tonight. Artichokes are a great source of silymarin, an antioxidant that may help prevent skin cancer. To eat these delicious veggies, peel off the tough outer leaves on the bottom, slice the bottom, and cut off the spiky top. Then boil or steam until tender, about 30-45 minutes. Drain. Dip each leaf in a vinaigrette or garlic mayonnaise, then gently tear the fibrous covering off with your front teeth, working your way inward to the tender heart. Once there, gently scoop the bristles from the middle of the heart, dip in a little butter or lemon juice, and enjoy! 


10. Coat barbecue food with a thick sauce. Grilling meat can create a variety of cancer-causing chemicals. But researchers from the American Institute for Cancer Research found that coating the meat with a thick marinade and thereby preventing direct contact with the charring flames reduced the amount of such chemicals created. Another tip: Precook your meat in the oven and then throw it on the grill to finish. 


11. Every time you go to the bathroom, stop by the kitchen or water cooler for a glass of water. A major study published in The New England Journal of Medicine in 1996 found that men who drank six 8-ounce glasses of water every day slashed their risk of bladder cancer in half. Another study linked the amount of water women drank to their risk of colon cancer, with heavy water drinkers reducing their risk up to 45 percent. 


12. Take up a tea habit. The healing powers of green tea have been valued in Asia for thousands of years. In the West, new research reveals that it protects against a variety of cancers as well as heart disease. Some scientists believe that a chemical in green tea called EGCG could be one of the most powerful anticancer compounds ever discovered. 


13. Have a beer tonight. Beer protects against the bacterium Helicobacter pylori, known to cause ulcers and possibly linked to stomach cancer. But don't overdo it. Drinking more than one or two alcoholic drinks a day may increase your risk of mouth, throat, esophageal, liver, and breast cancer. 

14. Throw some salmon on the grill tonight. Australian researchers studying Canadians (go figure) found those who ate four or more servings of fish per week were nearly one-third less likely to develop the blood cancers leukemia, myeloma, and non-Hodgkin's lymphoma. Other studies show a link between eating fatty fish (salmon, mackerel, halibut, sardines, and tuna, as well as shrimp and scallops) with a reduced risk of endometrial cancer in women. Ah, those amazing omega-3s at it again!
15. Take a multivitamin every morning. Many studies suggest getting the ideal levels of vitamins and minerals can improve your immune system function and help prevent a variety of cancers.
16. Get about 15 minutes of sunlight on your skin each day. You've heard of the sunshine vitamin, vitamin D haven't you? Turns out we've been so good at heeding advice to slather on sun lotion and avoid the sun's rays that many of us aren't getting enough of this valuable nutrient. Researchers find that getting too little vitamin D may increase your risk of multiple cancers, including breast, colon, prostate, ovarian, and stomach, as well as osteoporosis, diabetes, multiple sclerosis, and high blood pressure. 

The best source? Exposure to UVB rays found in natural and artificial sunlight. About 15 minutes a day ought to do it. Avoid overexposure, of course. That can increase your risk for cancers of the skin. You can also get vitamin D in your calcium supplement if you choose a supplement that contains both.
17. Carry a shot glass in your beach bag. Then fill it with sunscreen and rub it all over your body. A shot glass holds about 1.5 ounces, which is how much sunscreen dermatologists estimate you need to protect yourself from the cancer-causing UV rays of the sun. Repeat every two hours. 


18. Cut a kiwifruit in half, then scoop out the flesh with a spoon. Now eat! Kiwi is a little hand grenade of cancer-fighting antioxidants, including vitamin C, vitamin E, lutein, and copper. You can also rub a couple of cut kiwifruit on a low-fat cut of meat as a tenderizer. 


19. Use a condom and stick to one partner. The more sexual partners a woman has, the greater her risk of contracting human papillomavirus, or HPV, which causes cervical cancer. Having an unfaithful husband also increases her risk.
20. Cut out high-fat animal protein. A Yale study found that women who ate the most animal protein had a 70 percent higher risk of developing non-Hodgkin's lymphoma, while those who ate diets high in saturated fat increased their risk 90 percent. So switch to low-fat or nonfat dairy, have poultry or fish instead of beef or pork, and use olive oil instead of butter. 


21. Have your partner feed you grapes. They're great sources of resveratrol, the cancer-protecting compound found in wine, but don't have the alcohol of wine, which can increase the risk of breast cancer in women. Plus, the closeness such an activity engenders (we hope) strengthens your immune system. 


22. Sprinkle scallions over your salad. A diet high in onions may reduce the risk of prostate cancer 50 percent. But the effects are strongest when they're eaten raw or lightly cooked. So try scallions, Vidalia onions, shallots, or chives for a milder taste. 


23. Make a batch of fresh lemonade or limeade. A daily dose of citrus fruits may cut the risk of mouth, throat, and stomach cancers by half, Australian researchers found.
24. Take a 30-minute walk every evening after dinner. That's all it takes to reduce your breast cancer risk, according to a study from the Fred Hutchinson Cancer Research Center in Seattle. Turns out that moderate exercise reduces levels of estrogen, a hormone that contributes to breast cancer. When 170 overweight, couch potato women ages 50-75 did some form of moderate exercise for about three hours a week, levels of circulating estrogen dropped significantly after three months. After a year, those who lost at least 2 percent of their body fat had even greater decreases in estrogen. Another study linked four hours a week of walking or hiking with cutting the risk of pancreatic cancer in half. The benefits are probably related to improved insulin metabolism due to the exercise. 


25. Buy organic foods. They're grown without added pesticides or hormones, both of which can cause cellular damage that may eventually lead to cancer.
26. Learn to love dandelions. Using commercial pesticides on your lawn may increase your risk of cancer, since most contain pesticides such as 2,4-D (linked to non-Hodgkin's lymphoma) and MCPP (associated with soft-tissue cancers). Plus, pesticides used solely on lawns don't have to go through the same rigorous testing for long-term health effects as those used on food. And, as E/The Environmental Magazine noted in a 2004 article, no federal studies have assessed the safety of lawn-care chemicals in combination, the way most are sold. 


27. Buy clothes that don't need to be dry-cleaned. Many dry cleaners still use a chemical called perc (perchloroethylene), found to cause kidney and liver damage and cancer in animals repeatedly exposed through inhalation. Buying clothes that don't require dry cleaning, or hand washing them yourself, can reduce your exposure to this chemical. If you must dry-clean your clothes, take them out of the plastic bag and air them outside or in another room before wearing.
28. Choose cucumbers over pickles, fresh salmon over lox. Studies find that smoked and pickled foods contain various carcinogens.


29. Switch from french fries and potato chips to mashed potatoes and pretzels. A potential cancer-causing compound called acrylamide forms as a result of the chemical changes that occur in foods when they're baked, fried, or roasted. Not surprisingly, many foods with the greatest amounts of acrylamide are also some of the worst-for-you foods, such as french fries, potato chips, and baked sweets. Although the results aren't final yet, Michael Jacobson, Ph.D., executive director of the Center for Science in the Public Interest, estimates acrylamide causes between 1,000 and 25,000 cancers per year. His agency has petitioned the Food and Drug Administration to set limits on the amount of acrylamide foods can contain. The FDA is studying the issue. 


30. Go for a spray-on tan. They're available in most tanning salons these days and, unlike tanning beds, there's no evidence that they increase your risk of skin cancer. 


31. Call up your bowling pal and hit the lanes. A study from the State University of New York at Stony Brook found that men with high levels of stress and those with less satisfying contacts with friends and family members had higher levels of prostate-specific antigen (PSA) in their blood, a marker for the development of prostate cancer.
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CANCER CAUSES HYPOCHONDRIA

Posted by admin on 1/5/09

I am finished with my treatments. Now it's just follow-up visits with the surgeon and the oncologist. Both want me to get mammograms and MRI's done before each visit, the out-of-pocket cost being about $250 each time. I am done with going every three months, thank goodness, and will graduate to the once every 6 months schedule for the next 4 years.

We do not know if every single cancer cell was killed off by the chemo and radiation so I will be watched for 5 years, then put on the once-a-year schedule which all women my age should be on anyway. I do not know if it'll just be mammograms or if MRI's are going to continue as well.

I have a bomb inside me and we don't when or if it'll go off. The tumor was like having a dandelion inside me that started to go to seed. Did the surgeon get all of the root out? Did the radiation kill off any fine root hairs that were left behind in the soil? Did the chemo kill every single last seed that the wind blew into my lymph nodes.

According to the charts and the treatment I chose, my Stage 2A breast cancer gives me a 90% chance of living another 5 years and a 65% chance of making it 10 years. To some that might sound okay, but at the time of diagnosis I was only 47 and had a 10 year old daughter. Another 5 or 10 years is not acceptable. There is no data for 15 or 20 years, perhaps because most breast cancer patients are in their 60's when diagnosed and die of some other natural cause.

Every time I visit the doctor he asks me if any of my bones are hurting. I've read that bones are a popular place for the little escaped cancer cells to set up a new residence. I am fine-tuned into my bones, now.

During the summer of my chemo, I developed a very sharp pain in my right big toe that would suddenly come and go, sometimes making driving dangerous. It's a strange place for cancer to spread to and it's embarrasing to say "I have cancer in my toe" to people, but I asked the doctor about it anyway. I was referred to an orthopedist who order a million x-rays of my toe and foot. Nothing there but the normal things a 47-year old foot could have and nothing to explain the location of the pain. The orthopedist suggested it might be nerve damage, caused by the chemo. My two visits to the orthopedist cost $20 each. Can't recall what the x-rays cost - I probably blocked it out!

I also have a new pain in my left wrist. The orthopedist found nothing in the x-rays or his manipulation of my wrist to explain the pain. Once again, it might be nerve damage from the chemo. Maybe it's too much typing at my computer. Or it could just be that I am weird.

During the research for my article on Chemo Brain, I read that chemo can cause nerve damage, so that makes sense. I've been taking Aleve, 3 pills each day, for a month for my toe and wrist. They are feeling better lately so I'll consult a neurologist only if they start bothering me again.

This past fall, a tiny area on the inside of my ribs was sharply sore one night when I rolled over in bed. OMG - has it spread? The doctor kept asking me about bone pain and now I have it! After running around in circles with my hands waving in the air, I calmed down and told myself to give it one more day of pain before calling the doctor.

I called my oncologist on the second day and they got me in that afternoon. The doctor poked and prodded me and ordered x-rays, which cost me another $200. The x-rays came out negative for a long list of rib, chest and lung issues. Okay, now I can stop hyperventilating, and start feeling like a fool. A few weeks later, a friend told me that the area of my pain is near the gall bladder and perhaps I had a tiny stone that got expelled before the x-rays were taken.

I have friend, who died from breast cancer this past summer. She had headaches which her GP was treating as a sinus and migraine issue. Ended up the cancer had spread to her brain as well as the liver and lungs. Radiation and some chemo pills were able to zap the brain and liver but the lungs remainded cancerous.

I am so paranoid of this happening to me, getting treated for something else when it's really cancer that has spread. If I get anything that I can't explain I run to one of my cancer doctors rather than my GP. I want to rule out cancer first, before assuming it's something else. If cancer comes back a second time, the odds of winning are very low. It can be won but it depends how soon you catch it and where it is.

So my plan is, for the rest of my life, I am going to panic and run to the doctor for every last little thing. I don't know if they are laughing at my sense of humor, hypochondria, or all the way to the bank!
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CHEMO BRAIN

Posted by admin on 12/30/08

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Chemo Brain is a strange thing. Doctors don't really know what to make of it or what to do. Is it physical, psychological or imagined? It's definitely "in your head" no matter how you look at it. Is it even related to chemotherapy? It's not on any list of side effects from chemotherapy drugs.

One thing is agreed. Many chemo patients have complained about impaired thinking and assumed it had something to do with the chemo drugs. Studies are just now starting to investigate this strange complaint.
Here are some of the documented complaints in these new studies:
  • Forgetting things that one shouldn't forget
  • Trouble concentrating on tasks
  • Forgetting names, dates, memorable events
  • Difficulty multi-tasking
  • Slower thinking, processing and completion of mental tasks
  • Forgetting common words
Personally, after my 1st chemo treatment, back home that night, I received calls from relatives and friends wanting to see how I fared. For the life of me, I could not concentrate on their words or answer simple questions, let alone carry on a conversation. It was like I had a buzz from a drink or cold medicine. As soon as I felt my mind wandering (to nowhere) I handed to phone to my mom and said, "You take it." I felt bad brushing off my sister's call but I could not function! Luckily this only happened for that one night. I put myself to bed the other nights, not trying to socialize. I was always fine the next day.

According to recent studies, "mild cognitive impairment" ranges from a one-time-only event to long term condition. Some people complain of slight changes in ability while others are hit harder, like I was. It appears more often in patients with higher doses of chemotherapy drugs.

Experiments have linked nerve damage to some chemotherapy drugs but the effect on the brain cells is too new for results. Experts are concerned about chemotherapy treatments that are aggressive and high dosed. Possible treatment options that protect the brain are being studied as are existing medications that might also help treat chemo brain.

The causes and triggers of chemo brain are unknown at this time. Pictures of brain activity show changes in chemo patients that don't show up in non-chemo cancer patients. For some participants, these differences are still showing up 5 to 10 years after treatment ends.

Right now the best guesses as to the cause of chemo brain include the cancer itself, chemotherapy drugs, medication used to manage side effects of chemo drugs, patient age, stress, low blood counts (chemo kills off blood cells), depression, fatigue (chemo makes one anemic), and hormonal changes. Both men and women complain of chemo brain. About 25% of chemo patients report having thinking problems.

Personally, I think my chemo brain was a combination of things:
  • I had to suck down 5 bags of drugs.

  • I was in a strange place with people I didn't know fussing over me - poking a needle into my chest for the IV hookup, all of which was overwhelming and stressful.
  • I definitely think depression is a part - surgery, tests, poking and prodding, chemo...it's a sudden loss of control over one's life.

  • Fatigue - chemo kills off the red blood cells and makes you anemic and tired. After my subsequent chemo's I pretty much slept for a week, getting out of bed for meals and helping my daughter with schoolwork only.

  • Hormonal changes were definitely part of my experience. Ladies' ovaries are shut down by the chemo. Younger ladies bounce back after the treatments are over. I was old enough to be thrown into permanant menopause. I don't know about guys' hormones. I am relatively young so I don't think advanced age is on my list of possible causes. Most of my "mates" were old enough to be my parents or grandparents. The nurses called me "The Kid."


So what do us foggy-headed people do about this? Well, here is a list of what might help out:

  • Write down your schedule rather than try to remember everything

  • Make to-do lists
  • Do puzzles and other thinking games or exercizes

  • Get lots of rest

  • Exercise to help improve mood and decrease fatigue

  • Eat vegetables (studies show it helps the brain)

  • Create routines and rituals

  • Forget trying to multi-task for awhile

  • Keep a diary of times you have trouble thinking (times, food, meds, activity etc)

  • Accept the problem as temporary and have a sense of humor about it. Give yourself permission to be a little kooky.

  • Tell friends and family about it so they are aware of what you are going through
If chemo brain gets too severe, meet with a neurologist, psychoneurologist, or psychologist. These experts can test brain function and suggest mental activities to help you overcome or lessen the effect of chemo brain. Hopefully in the next few years, more will be known and more can be done to avoid or treat chemo brain.
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1 year PET Scan was today...

Posted by admin on 11/18/08




Today I had my one year PET Scan. I think things went pretty well, I will get the "Official" word next Tuesday.
I asked the Tech to burn my scan to a disc, he did it without any smooth talking on my part. I think that is a good sign. I know what my "Dirty" scan looks like, this one looks nothing like it. My first PET made my inside look like it was wrapped up in cheap-ass Christmas lights!

Have a look for yourself!

I also found out today that my shot of the Palace Theater won the grand prize for the Capture Kentuckiana book. First place out of 12,000 pics! I also sold 2 $400 Kentucky Derby pics to a customer on my photography website.

In the words of our Saviour , Ice-Cube, I gotta say it was a good day!
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WEIRD SIDE EFFECTS FROM CHEMO...

Posted by admin on 10/26/08

Losing my taste during the summer was weird. I couldn't taste strawberries or cherry pie! The only thing I could taste was salty stuff so that's what I ate- Mexican food, eggs with salt on top, chips, mashed potatoes, tuna sandwiches. I guess it's like having a cold and you can't taste anything. It's been a year now and I'm still not back 100%, especially with fruit flavors.

I was old enough that chemo put me into permanent menopause. I was happy to see Aunt Flo go away forever but the price was nuclear hot flashes! If I move around too much doing housework, let alone anything that actually qualifies as exercise, I get too warm and sweat covers my whole body in an instant. I have to wear summer jammies in the winter and be ready to throw off the blankets at a moment's notice. In the summer, it's a losing battle. Just breathing makes me get a hot flash. It's been a year and I am still "flashing."

I was so sleepy for about a week after each chemo treatment. It was the killed off red blood cells that made me anemic and tired. I'd get up for breakfast, go back to bed, get up for lunch, go back to bed, help my daughter with home and eat dinner, go back to bed until the next morning. Thank goodness my mom lived with us for 4 months to help out. XOXOXO to my "mommy."

How do I put this delicately? Let's just say "things" become thin and delicate as if I were 30 years older. The permanant menopause effect threw me into the world of geriatric intimate issues. It would have been nice to ease my way into this arena slowly over the years but unfortunately I was suddenly thrown into the deep end of this pool. The doctor wants me to try estrogen cream. Hope I didn't make you blush!

I usually did my chemos on Mondays. I received an IV bag of anti-nausea medicine there and pills for home and "tolerated" my treatments pretty well except for one thing - travel sickness - I would get car sick before even going a mile for the rest of the week. So even if I felt great and wanted to make a quick dash to the store, I stayed home for the next few days.
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HAIR LOSS =:-O

Posted by admin on 10/25/08

I read that it's good to get a short haircut before you even start chemo. Then as soon as the hair starts coming out, shave the head. This lets you be in charge of when the hair comes out. It's an important thing to do for your sanity. You are going through a "no sense of control" stage in your life with all the testing, surgeries, and treatments. All that poking and prodding! At least you can be in charge of the hair issue.

So I got a "long" pixie cut about a week before my first chemo. It was kind of cute. I've had my hair halfway down to my elbows for over 30 years. I decided I was going to do something similar once I got my hair back and not go back to super long.

About 2 weeks after my 1st chemo my hair started coming out in the shower. It creeped me out. I took maybe 2 or 3 more showers and finally got annoyed and had my mom cut my hair short with scissors and then my husband shaved my head. We did it outside in the backyard, leaving the hair for birds to use in their nests that summer.

I avoided looking in the mirror for a few days. It was hard to get used to. I signed up for a "Look Good Feel Better " class They teach you that now is a very important time to take care of your self esteem by taking the time to dress nice, use makeup and jewelry, and they showed tricks on wearing caps, hats, beanies and turbans as well as wig care. They gave each of us a tote bag that I swear was filled with quality cosmetics worth $200! When I was shopping at Kohl's a lady approached me and complimented my hat. It felt so good and I was feeling quite stylish that day!

My eyelashes and brows didn't come out until after my last chemo. The Looks Good Feel Better lady showed us how to do eyebrow pencil and eyeliner. Would you believe people said "at least you didn't lose your lashes" to me when I didn't have any lashes! That goes to show the wonders of makeup. I never opted for fake lashes, just used liner the right way.

My last chemo was October and my hair started coming back in December. It took another month to "fill in" and it wasn't until about March or April that I went out in public with nothing on my head. My hair was very short but I've seen women wear their hair that short so I felt confident that no one would think I was bald. It worked out fine. Nobody stared at me. I was so self-conscious. I continued to do the makeup and always wore earrings.

Some people's hair comes back different than it used to be. Curly, straight, slightly different color... Mine came in the same but there was more white than I remember. Perhaps I was just in denial of how much white I really had because I had been dying it for so many years!

So it's been almost exactly a year since my last chemo. My hair has grown about 4 inches.

The eyebrows didn't come all the way back. I have "glorified peachfuzz" but nothing you could actually call a hair. Who knows, maybe some of my peachfuzz hairs will mature into real hairs in the next year. My hair is thinner on crown. Some pink skin shows through. This is probably how I would look as an "old lady" but time got accelerated for me because of the chemo.

Summer was best. I wore a beanie/skull cap my friend made from t-shirt fabric (much better than wig liners) with either a pretty scarf or hat. I loved my hat. Wigs are no fun in the hot, sweaty summer! When the colder weather set in, wearing a scarf or summer style hat just didn't look right. At restaurants I wanted to dress up more. I started wearing my wig which is extra time and bother. Because I was trying to deceive people with fake hair, I was insecure and often worried whether people believed it was my own hair.

For unknown reasons my bald skin reacted whenever I wore anything on my head. Wig days were the worst. I got painful pimples on my head, even though I wore the cotton beanie/liner. I guess the rubbing did it. Every night I showered or bathed using facial acne soap on my head. My husband would dab acne medicine on the spots I couldn't reach. I was really disgusted with my appearance - bald and pimply! Once I figured out to use the acne treatments and to go bald around the house, my skin got better. I warned my daughter's friends who would come to visit for hours on end. I took some bravery to allow 10 and 11 year olds to see me, but I did it and they were very cool about it.

Footnote- enjoy not having to shave your pits and legs for as long as possible, ladies!


Here's my picture, taken about 6 months after my last chemo:

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My Lumpectomy

Posted by admin on 10/17/08

The surgeon skipped doing a needle biopsy and went straight for a lumpectomy. I went to the hospital very early in the morning as an outpatient. The morning wait was long - one person had the operating room ahead of me and then there was an emergeny appendectomy. The doctor shook me to wake me to say it was cancer. I rolled onto my side, pulled my knees up in fetal position, and cried and cried. I don't remember thinking anything, no words. Just emotion. Later on I cried, thinking to myself my daughter is too young (10) for her mommy to die.

I would have to return in about a week to have the margins and lymph nodes checked. For now it's up to the lab to test the lump for the individual characteristics of my cancer.

My tumor was about 10mm. My scar is about 2 inches long.
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Yogurt Lids fight cancer?

Posted by admin on 9/22/08

I was watching tv tonight and noticed a Yoplait Yogurt commercial in which they are asking everyone to send in their yogurt lids as part of a fundraiser.

From the Yoplait website:
During our annual drive, for every pink lid you send in Yoplait® will donate 10 cents to Susan G. Komen for the Cure®, up to $1.5 million. And we guarantee a donation of at least $500,000. So grab your friends, coworkers, yoga class or neighbors and start getting involved today.

10 cents for every lid!?
Why not just donate the price of postage directly to the Susan G. Komen Foundation? Do the simple math, one person sends one lid to Yoplait. They spent a MINIMUM of 42 cents for postage! That's over 4 times the money that would be raised!
Am I missing something here?

I'm no hippie, but it would seem that Yoplait is killing the environment as well. They want you to rinse the lid, bag it in a plastic bag and mail it.
Waste water, waste gas and use a shit ton of plastic.
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World Lymphoma Awareness Day? WTF?

Posted by admin on 9/16/08


So yesterday was World Lymphoma Awareness Day...
Wait one damn minute!
I had Lymphoma and did not know we had our own fancy day dedicated to us. I would STILL not know about this if My bubby Duane had not mentioned it. I guess those folks over at the Lymphoma Coalition are really doing a great job getting the word out!

From this day forward, I declare September 16th "WORLD BISCUITS AND GRAVY DAY"!
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Vote for my pics in the Capture Kentuckiana project!

Posted by admin on 8/2/08

The Courier Journal is running a photo contest of sorts to pic images for a coffee table book. I have about 30 images entered. My most popular pics are listed below. PLEASE GO VOTE FOR THEM! You do have to start an account. Just name and email, they do not send you anything. It is just to keep the voting fair.




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